LUPUS EUROPE MEMBERS

LE MEMBERS

LUPUS EUROPE MEMBER ORGANISATIONS

 

If you would like to contact one of our National Member Organisations, just send an e-mail to secretariat@lupus-europe.org 
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Belgium (Flemish)

Liga voor Chronische
Inflammatoire Bindweefselziekten vzw
Ingrid Hennes

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Belgium (French)

Bernadette van Leeuw

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Bulgaria

Bulgarian organisation for people with rheumatic diseases

Boryana Boteva

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Croatia

Petra Plivelić

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Cyprus

Lupus Cyprus – Cyprus League of People with Rheumatism
Marios Kouloumas

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Estonia

Ingrid Poldemaa

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Finland

Elina Eklund

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France (LUPUS France)

Lupus France
Catherine Guislain

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Greece

Pappa Athanasia

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Netherlands

Wendy Zacouris

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Norway

Kari Odegardt

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Poland

Part of 3majmy Się Razem Viola Zajk

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Portugal

Maria Altiva Paula

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Slovakia

Petra Balazova

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Spain

Silvia Perez Ortega

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Sweden

Katrin Rudgard

Riksförening för SLE

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United Kingdom

Paul Howard

LE ASSOCIATE MEMBER ORGANISATIONS

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Ireland

Caroline Daly

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Israel

Inbar Association for Rheumatic and Autoimmune Diseases

Sharon Abuloff Ram

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Russia

Anna Kosareva

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Slovenia

Petra Zajc

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Montenegro

Igor Medojevic

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3 hours ago

🌍 This #WorldLupusDay, take part in a unique event specially tailored for young people living with lupus:

😃 "Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist".

📆 May 10th.
🕖 19:00 CET (i. e. Paris time).

‼️ This is not just any webinar for the youth. It is a webinar made by youth for youth.

👀 So expect anything! This is why you cannot miss this date, whether you are young or not: understanding the worries and needs of young people with lupus is key to addressing their needs.

📧 Join us! Send an e-mail to secretariat@lupus-europe.org and secure your spot now.

www.lupus-europe.org/lupus-europe-youth-webinar/
... See MoreSee Less

🌍 This #WorldLupusDay, take part in a unique event specially tailored for young people living with lupus:

😃 Lupus and Youth: A Dialogue between the Lupus Europe Youth Group and a Young Rheumatologist.

📆 May 10th.
🕖 19:00 CET (i. e. Paris time).

‼️ This is not just any webinar for the youth. It is a webinar made by youth for youth.

👀 So expect anything! This is why you cannot miss this date, whether you are young or not: understanding the worries and needs of young people with lupus is key to addressing their needs.

📧 Join us! Send an e-mail to secretariat@lupus-europe.org and secure your spot now.

https://www.lupus-europe.org/lupus-europe-youth-webinar/

✅ While it's true that 9 out of 10 individuals diagnosed with #lupus are women, it's crucial to also reflect on the significant impact this disease has on men. Lupus does not discriminate, and understanding its effects on all genders is vital.

🌍 𝗠𝗲𝗻 𝗺𝗮𝘆 𝗳𝗮𝗰𝗲 𝘂𝗻𝗶𝗾𝘂𝗲 𝗰𝗵𝗮𝗹𝗹𝗲𝗻𝗴𝗲𝘀 𝗮𝗻𝗱 𝘀𝘆𝗺𝗽𝘁𝗼𝗺𝘀 that can differ from those typically reported by women and that is why we have included a specific section for men with lupus that has been created by men with lupus.

🇪🇺 If you are a 𝗺𝗮𝗻 𝗹𝗶𝘃𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 𝗹𝘂𝗽𝘂𝘀 𝗶𝗻 𝗘𝘂𝗿𝗼𝗽𝗲, your participation in this survey is essential to help us better understand how lupus affects men.

Your insights can lead to better support and more effective interventions for all men affected by lupus.

🔊 Remember! This anonymous survey is available in 21 languages and will take no more than 10 minutes to complete.

buff.ly/3UMZkAQ
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2 days ago

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻Weź udział w ankiecie.

🔊Udostępnij w swojej społeczności.

🙏 Help us and Lupus Poland achieve more answers to ensure that the Polish population is represented in the results

s.surveylegend.com/-Nr1vl1sxwISBcDaeOzP
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5 days ago

♦️ Few days left to fill the survey!

✍🏻 Realiza la encuesta.

🔊 Comparte con tu comunidad.

🙏 Help us and Felupus ensure the Spanish population is represented

s.surveylegend.com/-Nudx9pGv-1XtZ6OnYWs
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